Thursday, November 10, 2011

My Trip to the Mayo Clinic

Yesterday I had my appointment at the Mayo Clinic.  It wasn't as bad as I thought it would be.  In fact, it wasn't bad at all.  The day started off early, and for whatever reason, the alarm didn't go off.  Thankfully, my husband woke up and we rushed to get out of the house.  The drive down was uneventful.  The snow storm shifted and the weather was actually pretty nice.

We got to Rochester, parked and found the right place to check in.  Somehow, some of my information got lost, but I just resupplied it.  They were unable to get my blood pressure reading.  For some reason, it is difficult to get my blood pressure reading from the automated machines.

The doctor was very prompt- we had a very short wait, which is unusual.  She asked a lot of questions, and got my general history.  She also offered me some possible options.  One was Tysabri, a medication that was originally developed for MS.  According to her, the medication works great, however, there are very serious side effects.  If you have a latent virus in your system, it can cause a fatal brain infection.  She said this side effect has a 1 in 1000 risk if you have the virus, odds I am not willing to take.  So before you can take it, you need to check to see if you have the virus.  She also said the virus is present in most people.

She also offered up a way to take 6MP without liver problems.  I am scared of that, because it was awful when I had those problems last time I took 6MP.  She also mentioned clinical trials.  These trials are going on through my GI clinic, so I can participate from home.  However, she wants me to have ANOTHER colonoscopy and upper endoscopy.  Yuck!  Those are now scheduled for November 30.  I am not looking forward to that!  At least I can do them both at the same time.

The appointment was over by 9:00, and the doctor spent close to an hour with me.  After the appointment, my husband and I went out for breakfast at Perkins, since I had been instructed not to eat anything beforehand, in case I needed any tests.  It was a nice chance to hang out together.  I also called my friend, who had our son overnight since we had to leave so early.  She said he had a great time, and that her daughter and my son convinced her to get donuts for breakfast.

We came home and I started getting a sore throat on the way home.  I now have a full fledged cold, with sore throat, stuffy nose and a phlegmy cold.  I guess I was snoring last night, because my husband woke me up a few times.  I often snore when I have a cold.  So I got out of bed around 4 o'clock and tried to sleep on the couch, but that didn't work.  I'm going to try to nap this afternoon before I have to pick up my son at school.

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