Not Much to Say

I realized I haven't posted much recently, and I figured out why.  What can I say.  Oh, I hate butt pee.  I wish the diarrhea would go away.  I am so sick of the pain.  I'd love to eat a salad.  Nothing much has changed here.  I am working, but from home and as of now only 5 hours per day.  I worry that if I had to work in the office I'd never make it.  The other day I had an accident, and luckily I was home so I could clean myself up.  I haven't had anything like that happen in a long, long time.  I guess it was a reminder of why I need to fight to stay working from home.

I did have a doctor's appointment recently with a new doctor.  He coordinates the drug trials for Crohn's medications.  I didn't like him at all, and thought the entire appointment was a waste of time.  Practically the first thing he says to me is that he thinks I should have another colonoscopy.  Not gonna happen.  When he realized I wouldn't have another one (after all, I've had 2 in the last 10 months) he decided that my real issue is IBS.  I honestly don't think I have IBS, since my pain is always in the same exact place, where my Crohn's is most severe.  So it was completely unhelpful.

Me vs. Toilet

As someone with active Crohn's, I frequently have to go RIGHT NOW.  Not in 5 minutes, but right away.  This morning, it happened.  I needed to run to the bathroom.  I get there only to discover the toilet is clogged.  I knew from experience it is much easier to use the plunger when there is no poop in there, so I did my best to hold it.  I plunged and plunged.  It took what seemed like forever to unclog the toilet.  But eventually, after much splattering of toilet water, it worked.  I was so happy to be able to go.

Then my son wanted to go to the Science Museum.  My husband is out of town, so I told him we'd go, with the understanding that if I don't feel well, we leave.  He understands the drill, so I know he'll be ok.  We had fun there, but about an hour after we got there the urgent need came again.  We left the dinosaurs and headed to the bathroom.  My son has been through this too many times to count, and I feel bad for him.  He knows to wait outside the bathroom for me.  I was glad there was no on in there because it wasn't very pleasant.  About an hour after that, I felt so icky I knew we had to come home.  I hope one day not to be hampered by how I feel, and just anticipate going out for the afternoon.