Holidays

I haven't updated in a bit.  I went to my doctor's appointment a week ago, and he basically didn't have any advice for me.  Frustrating to say the least!  He put me on amitriptyline which can help with the pain.  It also exhausts me, which is something I didn't need more of.  I sleep so much more in the past week than before.  I did the "Agile test capsule" for the camera capsule test.  It passed without incident.  I swallow the pill camera on December 28.

My blood tests came back negative for celiac.  I am very relieved at that.  The doctor didn't think it was celiac because he said he saw no death of the villi which is usually evident, but he wanted to verify that was the case.  I guess that means the Crohn's is in the start of the small intestine (at the very least).  So since I've had sores in my mouth and throat in the past, and ulcers from the terminal illium (when I had it) throughout the large intestine and in the rectum and anus, it seems as if the Crohn's pretty much covers my entire digestive system.  The doctor at the Mayo clinic told me it doesn't spread, but if you have it in one area, you always do, but sometimes it flares there and other times it is quiet.  That scares the crap out of me (no pun intended).

So it is the holidays, which are often quite stressful for me anyway, but this year being sick and trying to decide about work are making it worse.  My son's school had the Hanukkah dinner on Tuesday night, which was the first night of Hanukkah.  I wish it had been a different night, as it meant we couldn't do our normal family tradition.  My son loves the Kindle Fire we got him.  But he was up very late that night and the next day was a field trip at school.  I volunteered at both and felt miserable, but my son really loves when I volunteer at school, so I do what I can.

Now we're getting ready to go to my husband's family for Christmas.  I enjoy going, but I feel so awful that I worry about it.  I hope it is fun, but I also hope I feel ok.