I feel like I'm never going to get better. I am sure that is not true, but it is feeling like that. Yesterday was my sister's annual Halloween party. I went with my husband and son. She had a taco bar, and I ate some taco. I probably shouldn't have done that, but I really wanted to, and at this point, it seems like eating what I want doesn't cause that much more pain than eating what I should eat. I am going to have pain either way, so I might as well eat what I want (within reason, or course. I still won't be having a green salad any time soon).
I also don't feel comfortable driving any more. I am constantly worried that I am going to have one of my super sharp pains and it will distract me, possibly causing an accident. So my husband drove us to the party yesterday. If I can't drive, though, how will I get the grocery shopping done? I simply can't do it with my husband and remain married to him. What about having any sort of a life? I guess I just don't need to have one anymore.
Anything I do now makes me super exhausted. I was so worn out yesterday after the party, even though I barely did anything other than sit down and chat with my family. A friend came over on Friday morning to visit with me, and that wore me out. We went to a friend's home for Shabbat dinner, and that wore me out. I made pancakes for breakfast for the family today and that wore me out. It seems like the smallest thing wears me out. I practically need naps daily.
I started a new medicine that should help with the pain. I really hope so. Tomorrow night is Halloween and we're going to my sister's house to trick or treat in her neighborhood. I want to be pain free and be able to go out with my son. I might end up staying home with my mother who will be handing out candy, though.
My appointment at the Mayo Clinic is November 9. However, when I called my insurance company on Friday to see the status of my request for this to be covered, they said they didn't receive the necessary information. I hope they get what they need and approve it before hand. I still have to gather my medical records from Health Partners, but that shouldn't take too much time. I am not sure what they can do for me that hasn't been done, but I guess I'll wait and see.
Sunday, October 30, 2011
Thursday, October 27, 2011
The ER Sucks
I hate going to the ER. You'd have to be crazy to like it there. But as someone who has had to go to the ER more times than I can remember, I detest it there. Absolutely hate it! I think it is the worst place to go when you are sick. Yes, they treat you, but unless you are having a heart attack or come in by ambulance, you have to wait. And you never know how long the wait will be. It isn't a first come, first serve kind of place. You don't take a number and wait, like at the bakery. You are treated by the severity of your condition. For me, my possible condition is fairly serious, but it isn't life or death. So I sometimes have to wait.
Yesterday, I had a lot of pain during the day, and didn't have regular BMs, instead I just had one small one that was black, which generally means blood. So I called my GI to ask what I should do. He called me around 5:00 as my hands were covered by pizza dough. He wanted me to go to the ER, and warned me that I might end up being admitted. So I called my mom and asked her to come stay with my son so my husband could take me to the ER. We arrived at the ER around 6:00. I was told repeatedly that I would be seen right away.
After an hour, I was told I would be next. Instead, after an hour and a half, they pulled me to the side of the waiting area to try to start an IV. The nurse told me he'd been doing it for 27 years when I told him that I am hard to get IVs to start. Of course, he couldn't get one started. He called for IV services to come down with an ultrasound. By the time the IV guy came, they had a room for me. So we went back to my room, and the IV guy, Jeff, got it started after only 2 tries. So it took 3 stabs for the IV to get started. My BP in triage had been high, around 150/100 or so, because I was in excruciating pain. It remained high while I was there, even though my normal BP is around 117/70. Then, instead of seeing a doctor, I was seen by a med student. She was great, but it was odd that I wasn't treated by a doctor. She ordered some morphine for me, and the wonderful nurse Pat was so kind as to inject the morphine very slowly, so I never got that funky feeling I get when they slam it in. Blood tests were ordered, and the first phlebotomist couldn't get blood from her first stick, and then she said she'd definitely be able to get blood from the inside of the wrist, which hurts like heck. But I wanted to get the blood drawn, as I knew it was going to be difficult to get the blood drawn. As usual, it didn't work, and my left wrist was in a lot of pain.
While waiting for the next phlebotomist to come, I had a CT scan. I have to be at some sort of cancer risk from all the CT scans I've had done. But they offered to do an X-ray instead, but past experience is that they do the X-ray, and it is inconclusive so then the do the CT. So I just went right for the CT.
After that, my husband & I watched most of Secrets of the Dead. It was an episode I'd seen before, which was good (where they examine the remains found in Mexico of an Aztec massacre). It took about an hour to get the results of the CT scan, but I still hadn't had blood drawn. Then, the med student told me the CT scan showed no obstruction or abscess. Instead, it showed inflammation, but no change from the CT scan I had done in July. I asked the med student if the inflammation was localized or spread throughout my intestines, and she informed me that the inflammation was widespread all through my large and small intestine.
They finally got my blood drawn, and it was OK. So they sent me home with an Rx for vicodin and told me to call my doctor. I was able to sleep until almost 11 this morning, so I didn't have too much of a morphine hangover.
Yesterday, I had a lot of pain during the day, and didn't have regular BMs, instead I just had one small one that was black, which generally means blood. So I called my GI to ask what I should do. He called me around 5:00 as my hands were covered by pizza dough. He wanted me to go to the ER, and warned me that I might end up being admitted. So I called my mom and asked her to come stay with my son so my husband could take me to the ER. We arrived at the ER around 6:00. I was told repeatedly that I would be seen right away.
After an hour, I was told I would be next. Instead, after an hour and a half, they pulled me to the side of the waiting area to try to start an IV. The nurse told me he'd been doing it for 27 years when I told him that I am hard to get IVs to start. Of course, he couldn't get one started. He called for IV services to come down with an ultrasound. By the time the IV guy came, they had a room for me. So we went back to my room, and the IV guy, Jeff, got it started after only 2 tries. So it took 3 stabs for the IV to get started. My BP in triage had been high, around 150/100 or so, because I was in excruciating pain. It remained high while I was there, even though my normal BP is around 117/70. Then, instead of seeing a doctor, I was seen by a med student. She was great, but it was odd that I wasn't treated by a doctor. She ordered some morphine for me, and the wonderful nurse Pat was so kind as to inject the morphine very slowly, so I never got that funky feeling I get when they slam it in. Blood tests were ordered, and the first phlebotomist couldn't get blood from her first stick, and then she said she'd definitely be able to get blood from the inside of the wrist, which hurts like heck. But I wanted to get the blood drawn, as I knew it was going to be difficult to get the blood drawn. As usual, it didn't work, and my left wrist was in a lot of pain.
While waiting for the next phlebotomist to come, I had a CT scan. I have to be at some sort of cancer risk from all the CT scans I've had done. But they offered to do an X-ray instead, but past experience is that they do the X-ray, and it is inconclusive so then the do the CT. So I just went right for the CT.
After that, my husband & I watched most of Secrets of the Dead. It was an episode I'd seen before, which was good (where they examine the remains found in Mexico of an Aztec massacre). It took about an hour to get the results of the CT scan, but I still hadn't had blood drawn. Then, the med student told me the CT scan showed no obstruction or abscess. Instead, it showed inflammation, but no change from the CT scan I had done in July. I asked the med student if the inflammation was localized or spread throughout my intestines, and she informed me that the inflammation was widespread all through my large and small intestine.
They finally got my blood drawn, and it was OK. So they sent me home with an Rx for vicodin and told me to call my doctor. I was able to sleep until almost 11 this morning, so I didn't have too much of a morphine hangover.
Wednesday, October 26, 2011
Oh! My! Gawd!
I CANNOT take this pain any more. It woke me up again last night and prevented me from falling back to sleep. I think I got around 3 and a half hours last night. This pain goes from nothing to holy f-ing hell I'm about to die. I'm a bit worried because I haven't had a BM since yesterday afternoon. That could mean two things. I am constipated or I am starting an obstruction. I have felt the need to go, but each time it was just passing gas. For a normal person not having a BM for about 24 hours would be no big deal. For me, it is extremely unusual. I hope it is all some joke my body is playing on me, and that about 10 minutes after I publish this, I'll go to the bathroom and have a huge BM. That is my hope, but as I've come to realize that nothing seems to go the way I want it to. I am considering going to the ER if this doesn't stop by tonight.
Please let it all be a false alarm!
Please let it all be a false alarm!
Monday, October 24, 2011
I want my life back!
I have been so miserable. The pain is not going away. It is both on my left side (not too often, but when it is there, it is sharp) and the usual spot on my right. The pain has kept me awake and woke me up several times. I have been so nauseated I feel like I'm having flashbacks to being pregnant, but without the joy of waiting for a baby. And the D has been miserable. I barely made it to the bathroom this morning. I really thought I might have an accident. Fortunately that didn't happen.
Due to my deteriorating health, and my spirits plummeting, I called the doctor today. I really wanted something for the nausea. I thought if I could just stop feeling that, then the other problems wouldn't be so overwhelming. And this is why I love my doctor:
He called at 5:05, the time of day my house is in chaos. My son and his friend were playing Mario Bros., my husband was outside taking down the sukkah and I was getting dinner ready and trying (not successfully) to clear off the dining room table so we could sit for dinner (it is always where everyone, myself included, put stuff when we don't want to put it away). The phone rang, and I figured it was either my doctor's office or a telemarketer. After a fight over getting someone to answer the phone, I barely got it before it went to voice mail. It was my doctor. Not his patient coordinator but the doctor. He wasn't phased by the noise in the background (or me asking the boys to keep it down). After apologizing for taking so long to get back to me (I called at 11:00AM), he wanted to know what was going on with me. I described my symptoms and he suggested either predisone (YUCK!!!!) or budesonide (less yuck), so of course I chose the budesonide. And then I asked if I could stop taking the methotrexate. He agreed, but wants me to call him back on Friday to see if that takes care of the nausea.
It was so nice to be able to talk to the doctor and not a coordinator, like my previous GI's office. Back then, it was impossible to speak to a doctor. But not just this office, but this particular GI is great about getting back to me. He called the house the day after my colonoscopy to make sure I was all right and to make sure I was coming in to the office soon to discuss the results.
I really hope this helps, as I have a busy week ahead. Or at least busy for me now that I'm not working. Thursday it is the Kindergarten/ buddy family potluck at my son's school. My husband is the buddy family coordinator and we have to attend, and I really want to anyway. Then Friday, we are going to Shabbat dinner at the home of one of my son's friends. It is actually the friend's grandmother's home. I am looking forward to that. The grandfather had been my Civil Procedure professor in law school and he just passed away this past May. Then Saturday is my sister's annual Halloween Party. I refuse to miss that because I want to see my nieces and nephews in costume and spend some time with my sister. My son would be crushed if I missed that.
Sunday I only have to manage to get my son to his swim lesson, but my husband will probably do that, because they want to go geocaching afterwards. And of course Monday night is Halloween, and I want to take my son out trick or treating.
So please let this help! I want my life back. Desperately.
Due to my deteriorating health, and my spirits plummeting, I called the doctor today. I really wanted something for the nausea. I thought if I could just stop feeling that, then the other problems wouldn't be so overwhelming. And this is why I love my doctor:
He called at 5:05, the time of day my house is in chaos. My son and his friend were playing Mario Bros., my husband was outside taking down the sukkah and I was getting dinner ready and trying (not successfully) to clear off the dining room table so we could sit for dinner (it is always where everyone, myself included, put stuff when we don't want to put it away). The phone rang, and I figured it was either my doctor's office or a telemarketer. After a fight over getting someone to answer the phone, I barely got it before it went to voice mail. It was my doctor. Not his patient coordinator but the doctor. He wasn't phased by the noise in the background (or me asking the boys to keep it down). After apologizing for taking so long to get back to me (I called at 11:00AM), he wanted to know what was going on with me. I described my symptoms and he suggested either predisone (YUCK!!!!) or budesonide (less yuck), so of course I chose the budesonide. And then I asked if I could stop taking the methotrexate. He agreed, but wants me to call him back on Friday to see if that takes care of the nausea.
It was so nice to be able to talk to the doctor and not a coordinator, like my previous GI's office. Back then, it was impossible to speak to a doctor. But not just this office, but this particular GI is great about getting back to me. He called the house the day after my colonoscopy to make sure I was all right and to make sure I was coming in to the office soon to discuss the results.
I really hope this helps, as I have a busy week ahead. Or at least busy for me now that I'm not working. Thursday it is the Kindergarten/ buddy family potluck at my son's school. My husband is the buddy family coordinator and we have to attend, and I really want to anyway. Then Friday, we are going to Shabbat dinner at the home of one of my son's friends. It is actually the friend's grandmother's home. I am looking forward to that. The grandfather had been my Civil Procedure professor in law school and he just passed away this past May. Then Saturday is my sister's annual Halloween Party. I refuse to miss that because I want to see my nieces and nephews in costume and spend some time with my sister. My son would be crushed if I missed that.
Sunday I only have to manage to get my son to his swim lesson, but my husband will probably do that, because they want to go geocaching afterwards. And of course Monday night is Halloween, and I want to take my son out trick or treating.
So please let this help! I want my life back. Desperately.
Friday, October 21, 2011
Nausea is the worst!
I have been so nauseated for so long. It just seems like a way of life now. I can't handle it any more. I hate it. And it makes everything else worse. Yesterday it was practically unbearable. I had to end a conversation with my husband to run to the bathroom, for a different reason than usual. Today I have a lot of nausea and a lot of D. It is like the worst of both worlds. The only thing that helps the nausea that I can find so far is to drink Pepsi with ice. The kind of Pepsi that has sugar. And I can't eat fruit or vegetables. So by the time I get my Crohn's under control, I'll have gained a hundred pounds.
My son is off school for Shemini Atzeret yesterday and Simchat Torah today. The public schools are closed for MEA (whatever that is). So yesterday he went to bug camp at Como Zoo, and today, after OT, my husband and son are going camping. It is so cold here, with temps what they would normally be in mid-November. But my son loves it, and my husband likes it, so they'll have a lot of fun, I'm sure. Yesterday evening, my husband went out with friends for his birthday (it was Tuesday), so when my son got home from camp he had his friend over and they played Mario Bros and I made them pizza. It was so nice to see them playing together. It reminded me of when I was a kid. And reassured me that he is fine making friends. For the longest time we worried about his social interaction, but now that one kid in particular is not around him any more, he seems to have matured a great deal.
Next week he goes back to a regular schedule. I'm hoping to start feeling better then. I don't have any reason for this except some blind optimism.
My son is off school for Shemini Atzeret yesterday and Simchat Torah today. The public schools are closed for MEA (whatever that is). So yesterday he went to bug camp at Como Zoo, and today, after OT, my husband and son are going camping. It is so cold here, with temps what they would normally be in mid-November. But my son loves it, and my husband likes it, so they'll have a lot of fun, I'm sure. Yesterday evening, my husband went out with friends for his birthday (it was Tuesday), so when my son got home from camp he had his friend over and they played Mario Bros and I made them pizza. It was so nice to see them playing together. It reminded me of when I was a kid. And reassured me that he is fine making friends. For the longest time we worried about his social interaction, but now that one kid in particular is not around him any more, he seems to have matured a great deal.
Next week he goes back to a regular schedule. I'm hoping to start feeling better then. I don't have any reason for this except some blind optimism.
Tuesday, October 18, 2011
Meth day
It is Meth day again. Ugh! But before I took my meth shot, I helped out at my son's school. They had breakfast in the sukkah. But my son had to go to OT before school, and missed the breakfast. He was devastated that he couldn't eat with his friends, even though I saved him a plate and he got to eat it during math. It is also my husband's birthday. He is going out with some friends Thursday evening. I hope they have fun.
On to the meth. As soon as I injected myself, I had to fight the nausea. I nearly threw up several times. After that, I spent the rest of the afternoon feeling miserable. And now I have pain in my left side, someplace I don't usually have pain. I am worried, because the pain is pretty sharp and intense. I really hope I don't end up in the ER again.
On to the meth. As soon as I injected myself, I had to fight the nausea. I nearly threw up several times. After that, I spent the rest of the afternoon feeling miserable. And now I have pain in my left side, someplace I don't usually have pain. I am worried, because the pain is pretty sharp and intense. I really hope I don't end up in the ER again.
Sunday, October 16, 2011
Too Busy
I am going to be so happy when the fall holidays are over. I've been too busy, and feel horrible. And my Crohn's has been affected by it, too. Thursday, my son was home from school, and I had to clean the house and prepare for our Sukkot party. The party was fun, and it was great to see friends again. Then Friday, I met a friend with her daughter and a classmate at the children's museum with my son. After lunch, we went to Candyland. The smell in there made me really nauseated. I had to run back to the Children's Museum to go to the bathroom. Fortunately, I didn't vomit and my friend was able to take care of my son while I was gone. Then, when we got home, I was really sick. I ended up not being able to go to services, and my mom was there for dinner, but I couldn't eat.
Then Saturday, my son really wanted me to join him and my husband at the zoo. I shouldn't have gone, but I did anyway. I didn't feel all that great there. I had to make many stops in the bathroom. Then, when we got home, my husband was busy getting ready for the Temple's Sukkot festival (he operates the apple press there). Then today, my son and I were home together all morning while my husband worked at the festival. Then we went to a friend's Sukkot party.
All this activity and irregular schedule has really affected my bowels. I was finally down to single digit number of BMs per day, and now I'm back in the double digit land. Plus, the D is very uncomfortable, and I've been having more stabbing pain in addition to the regular pain. And on top of that, I am out of pain medication. Friday night I realized that I had one dose left, and I just had to take it. I hope I can reach my doctor Monday morning so I can get a refill, not that it does all that much for the pain anyway.
Tomorrow, I am driving my son to school so my husband can sleep in a bit, then I have to call the doctor and hopefully get a refill and then go to Target. We are out of milk, eggs and pizza fixings (when I don't feel well, that is the easiest meal to make, and the boys really like it). Then Tuesday at my son's school they are having breakfast in the sukkah, and I volunteered to help. Wednesday I will refuse to make any plans and am not leaving my bed, especially since my son has Thursday off from school and my husband has to work.
Then Saturday, my son really wanted me to join him and my husband at the zoo. I shouldn't have gone, but I did anyway. I didn't feel all that great there. I had to make many stops in the bathroom. Then, when we got home, my husband was busy getting ready for the Temple's Sukkot festival (he operates the apple press there). Then today, my son and I were home together all morning while my husband worked at the festival. Then we went to a friend's Sukkot party.
All this activity and irregular schedule has really affected my bowels. I was finally down to single digit number of BMs per day, and now I'm back in the double digit land. Plus, the D is very uncomfortable, and I've been having more stabbing pain in addition to the regular pain. And on top of that, I am out of pain medication. Friday night I realized that I had one dose left, and I just had to take it. I hope I can reach my doctor Monday morning so I can get a refill, not that it does all that much for the pain anyway.
Tomorrow, I am driving my son to school so my husband can sleep in a bit, then I have to call the doctor and hopefully get a refill and then go to Target. We are out of milk, eggs and pizza fixings (when I don't feel well, that is the easiest meal to make, and the boys really like it). Then Tuesday at my son's school they are having breakfast in the sukkah, and I volunteered to help. Wednesday I will refuse to make any plans and am not leaving my bed, especially since my son has Thursday off from school and my husband has to work.
Wednesday, October 12, 2011
Sukkot starts tomorrow
Or actually, it starts tonight at sundown. Now most American Jews probably don't celebrate Sukkot. If my son went to public school, we probably would be unaware of it. However, he goes to a Jewish school, so we know Sukkot is here because he is off school tomorrow and Friday. And next week is Shmini Atzeret and Simchat Torah, so he is off next Thursday and Friday. Then that is the end of the fall holiday cycle. I will be happy when we get back into a normal routine. But our sukka is up in the back yard, and we're having people over tomorrow for snacks. It should be fun. I look forward to being normal and having conversations with people.
I have been having a lot of pain lately. Last night I was up with pain. I have pain now, too. I've had quite a bit of butt pee today. My poor bum hurts. And yesterday was my meth shot day. My mouth tastes like metal. It is so disgusting. Ugh!
I called my GI doctor from when I lived in NY to see if I could get my medical records. However, they only keep them for 10 years, so no luck there. I am waiting for the release from HealthPartners to see if I can get my records from them. I am getting all the stuff ready for my consultation at the Mayo Clinic.
I have been having a lot of pain lately. Last night I was up with pain. I have pain now, too. I've had quite a bit of butt pee today. My poor bum hurts. And yesterday was my meth shot day. My mouth tastes like metal. It is so disgusting. Ugh!
I called my GI doctor from when I lived in NY to see if I could get my medical records. However, they only keep them for 10 years, so no luck there. I am waiting for the release from HealthPartners to see if I can get my records from them. I am getting all the stuff ready for my consultation at the Mayo Clinic.
Monday, October 10, 2011
I Shouldn't Have Eaten that Apple
I guess Eve started it. By eating the first apple. But my apple misfortune has far less reaching consequences.
We've had beautiful October weather. Or horrible, it depends on your point of view. It has been hot, several days reaching the upper 80s. Yesterday was another of these atypical warm beautiful October days. My father and step mother were in town, and my sister, brother in law and two nieces were going to the apple orchard with them. So we decided to join them as my son wanted to see his grandparents one more time before they leave. The orchard was far away, in Jordan, but it was a pretty drive. Until my son started complaining he had to go potty NOW! As a Crohnie, I understood, but there was no where to go for almost 10 minutes. That was miserable. But we spotted a golden arches, and crises was averted.
We got to the orchard, but my father and step mom weren't there yet. So my son played a bit with my older niece (who is 3 years younger than him). They climbed the hay pile and played a little on the play set. My sister and I went into the shop and bought some donuts and my niece was so nice and gave hers to my son. Once my dad and stepmom got there, we got on the tractor ride and went to the orchard. We started picking, and I found an apple that looked so good. I just had to eat it. It tasted great! I can't remember the last time I ate fresh produce (with the exception of a banana, I'd say early July). I knew it wasn't good for me (and isn't that odd to think an apple isn't good for me) but I did it anyway. The rest of the day was a typical orchard visit. We found a woolly bear caterpillar and it fascinated my son. He loves wildlife and spent most of the day carrying it around. It had a very small orange band, which according to old wives tales means we'll have a harsh winter (Yay?).
Today I paid for eating the apple. Or actually starting last night. My husband allowed our son to stay up to watch all of Sunday Night Football (Green Bay was playing). I spent a bit of the evening going to the bathroom. I was very tired and couldn't wait for the game to be over so I could go to bed. Finally, when it was done, I laid down, but couldn't fall asleep due to pain. I finally fell asleep around 3:00. The alarm goes off at 6:00. Plus, my husband said I snored a lot (I'm getting a cold). This morning all my poop was green. Green poop generally means the food is rushing so fast through the digestive system the bile in the poop doesn't get a chance to get reabsorbed. It also means more than usual exhaustion. Which is on top of the exhaustion of not sleeping due to pain and a cold. I napped for about 2 and a half hours this afternoon, but it wasn't enough.
Yesterday our Sukka also came and was put up. We're having a "snacks in the sukka" get together. (and by snacks I mean "Jewish definition of snacks which is actually an entire meal". So we have to clean the house a bit and I have to figure out the menu. At least all our friends know I've been sick, so if the house isn't perfect, they'll understand. I hope.
We've had beautiful October weather. Or horrible, it depends on your point of view. It has been hot, several days reaching the upper 80s. Yesterday was another of these atypical warm beautiful October days. My father and step mother were in town, and my sister, brother in law and two nieces were going to the apple orchard with them. So we decided to join them as my son wanted to see his grandparents one more time before they leave. The orchard was far away, in Jordan, but it was a pretty drive. Until my son started complaining he had to go potty NOW! As a Crohnie, I understood, but there was no where to go for almost 10 minutes. That was miserable. But we spotted a golden arches, and crises was averted.
We got to the orchard, but my father and step mom weren't there yet. So my son played a bit with my older niece (who is 3 years younger than him). They climbed the hay pile and played a little on the play set. My sister and I went into the shop and bought some donuts and my niece was so nice and gave hers to my son. Once my dad and stepmom got there, we got on the tractor ride and went to the orchard. We started picking, and I found an apple that looked so good. I just had to eat it. It tasted great! I can't remember the last time I ate fresh produce (with the exception of a banana, I'd say early July). I knew it wasn't good for me (and isn't that odd to think an apple isn't good for me) but I did it anyway. The rest of the day was a typical orchard visit. We found a woolly bear caterpillar and it fascinated my son. He loves wildlife and spent most of the day carrying it around. It had a very small orange band, which according to old wives tales means we'll have a harsh winter (Yay?).
Today I paid for eating the apple. Or actually starting last night. My husband allowed our son to stay up to watch all of Sunday Night Football (Green Bay was playing). I spent a bit of the evening going to the bathroom. I was very tired and couldn't wait for the game to be over so I could go to bed. Finally, when it was done, I laid down, but couldn't fall asleep due to pain. I finally fell asleep around 3:00. The alarm goes off at 6:00. Plus, my husband said I snored a lot (I'm getting a cold). This morning all my poop was green. Green poop generally means the food is rushing so fast through the digestive system the bile in the poop doesn't get a chance to get reabsorbed. It also means more than usual exhaustion. Which is on top of the exhaustion of not sleeping due to pain and a cold. I napped for about 2 and a half hours this afternoon, but it wasn't enough.
Yesterday our Sukka also came and was put up. We're having a "snacks in the sukka" get together. (and by snacks I mean "Jewish definition of snacks which is actually an entire meal". So we have to clean the house a bit and I have to figure out the menu. At least all our friends know I've been sick, so if the house isn't perfect, they'll understand. I hope.
Thursday, October 6, 2011
Never Say Things Are Going Well
Because when you say things are going well, that means they are about to go down the toilet. At least for me, that is how it goes. Yesterday I had coffee with a friend. It was great, and I felt pretty good. However, it took a 3 hour nap to recover. But my BMs were normal, and there were only 4 all day.
What a difference a day makes. This morning I made Challah French Toast for my son for breakfast and drove him to school. Before I left I had nasty D. Then after I dropped him off, I had to go to Target to get some things I forgot when I went grocery shopping. I had to stop at the Target bathroom and had bad abdominal cramps the entire time. Then I came home, and after putting the groceries away, sat on the couch to watch Doc Martin (I love that show!). In fifteen minutes time, I had to pause it and run to the bathroom three times. The last time I left my drink on the table, not thinking about it. One of the cats, who has a habit of knocking drinks over, did just that. Ice, drink and straw all over the carpet. Ugh! And it seems like it is only going to get worse. I took pain pills already, and they don't seem to be working yet.
What a difference a day makes. This morning I made Challah French Toast for my son for breakfast and drove him to school. Before I left I had nasty D. Then after I dropped him off, I had to go to Target to get some things I forgot when I went grocery shopping. I had to stop at the Target bathroom and had bad abdominal cramps the entire time. Then I came home, and after putting the groceries away, sat on the couch to watch Doc Martin (I love that show!). In fifteen minutes time, I had to pause it and run to the bathroom three times. The last time I left my drink on the table, not thinking about it. One of the cats, who has a habit of knocking drinks over, did just that. Ice, drink and straw all over the carpet. Ugh! And it seems like it is only going to get worse. I took pain pills already, and they don't seem to be working yet.
Tuesday, October 4, 2011
Meth day
Yesterday was a good day. I hate to say that, because it seems like a jinx, or as my grandmother would say, kinna hurra (Yiddish). But it was a good day. Today, not so much. It is amazing what an injection of a tiny amount of medicine into my abdomen can do. I have the most disgusting taste in my mouth, I am very nauseous and I feel out of breath. Plus all over I feel crappy. All over. I can't imagine working while on this medicine.
Saturday, October 1, 2011
Shana Tova!
We had a nice holiday here. The family went to the early service, which had special activities for the kids during the sermon, which was probably the only part my son enjoyed. Then we went to dinner at my mom's house for a nice Rosh Hashonah dinner. I had such bad diarrhea that evening. I'm not sure if it was the food or a coincidence, but I was in the bathroom at least 4 or 5 times just while we were there. I also had bad pain (really bad!) the whole day Thursday. I took the pain pills, but they didn't really do anything.
Friday I slept for a few hours during the day. I was so tired (and still am), but with my son home, there was no way I was going to get uninterrupted sleep. But I was thankful for the few hours I got during the day. My husband left town yesterday evening. He should be home Sunday afternoon. Right now my son is at a birthday party, and I was unable to sleep. I have a lot of D, and every time I start to doze off, I have to go to the bathroom. This also kept me awake later than I would normally be up last night. The constant bathroom runs are annoying!
I got my paperwork yesterday for my consult at the Mayo clinic. I am not thrilled about seeing yet another doctor, and don't have much hope she can do much more for me than is already being done, but I guess we'll see.
Friday I slept for a few hours during the day. I was so tired (and still am), but with my son home, there was no way I was going to get uninterrupted sleep. But I was thankful for the few hours I got during the day. My husband left town yesterday evening. He should be home Sunday afternoon. Right now my son is at a birthday party, and I was unable to sleep. I have a lot of D, and every time I start to doze off, I have to go to the bathroom. This also kept me awake later than I would normally be up last night. The constant bathroom runs are annoying!
I got my paperwork yesterday for my consult at the Mayo clinic. I am not thrilled about seeing yet another doctor, and don't have much hope she can do much more for me than is already being done, but I guess we'll see.
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