Monday

Well, today wasn't too bad.  I had some mid-afternoon pain, and a lot of D, but not intolerable.  I even went to Costco this morning.  But that did wear me out.  I remember having energy to go to Costco AND do at least one other thing in the same day.  It seems almost like a dream now, but I'm sure at one point I had enough energy to do both.  And I'm positive there was a time in my life when a trip to Costco didn't require a 2 hour nap to recover from it.  I just can't seem to believe it was real.  It feels like every thing I do beyond walking to the bathroom is going to require a 2 hour nap to recover.  Tomorrow is going to be horrendous.  My husband is going to Orlando for work, and besides driving both him and my son in the morning, I have to pick my son up and bring him to OT after camp.  That is like 4 hours of stuff to do.  And once we get home, I can't nap because I need to take care of him.  For a normal, healthy person, this wouldn't be a cause of concern.  For me, I am just so worried about how I'm going to get the energy to do it all.  And Wednesday, I have to drive back and forth from camp.  My husband won't be home until Friday afternoon.  I can't imagine how this will work.  But I'm sure we'll get through it.

On the bowel front, I have happy news (NOT!).   Lots of blood in my stools today.  Hooray for me, right?  It isn't making the fatigue any better.  At least it isn't butt pee anymore.  See, there's always a bright side!