No More!

While on the methotrexate, I have to get regular blood draws.  Normally, this is just an annoyance, but this time, it was way worse.  I went on Monday, and they couldn't get blood, so they told me to come back on Wednesday.  So I went back today, after drinking as much fluid as I could, and it was miserable!  They poked and poked and were only able to get one of the 3 vials they needed.  So they told me at the office they'd contact my doctor and he'd be getting back to me.  This afternoon, his patient coordinator called, and she wanted me to go to the hospital to get the blood drawn.  I almost lost it on her.  I said "No!"  No more needle sticks, no more poking.  I am NOT a human pincushion!  My arms hurt and are bruised.  She called the doctor and called back a bit ago.  The doctor told her I don't have to go back until next month for more blood tests.  Good, because I wasn't going to.

It doesn't matter how much I drink beforehand, because the more I drink, the more D I have.  It feels very pointless to me.  I am not sure what I'm going to do, because the meth should have started working by now, but it hasn't.  I'm still having pain and D.  Maybe a little less than before, but still pain and D.  And, on top of that, I'm exhausted all the time.  ALL.  THE.  TIME.  I am just frustrated.

A Whole New School Year

Yesterday was the first day of the school year for our son.  He started second grade.  He was very nervous about it, and asked that my husband drive and that I sit in the back seat with him on the way to opening services.  I had no problem with it.  We "shot" poison dart frog darts at each other the whole drive, and shot them at daddy, too.  We got there, and he was so normal with his friends.  The opening service was beautiful, as usual, and it was nice to see some of the other moms who I count among my friends.  However, by the time we left, I was dead beat tired.

My husband drove me home, and I tried to nap for a bit.  I couldn't take a pain pill because I had to drive to the doctor's office yesterday afternoon for a blood draw.  I was unable to sleep, but I did rest for a few hours.  The phlebotomists were unable to get the blood after 3 sticks, so I have to go back Wednesday morning.  I could have skipped the whole thing and just taken the pain meds.  Bummer.

Last night was a paddleboat cruise on the Mississippi river for volunteers of the Neighborhood House, and we were invited to go on it.  At first, I thought I'd stay home, as I was so tired and not feeling great with intermittent pain in my abdomen.  However, at the last minute, I decided to go, and I'm glad I did.  I basically sat on the upper deck the entire time and watched the river go by.  The weather was perfect, and I am glad it was one less thing that I had to miss because I'm sick this summer.

Today, after the activity of yesterday (which wouldn't feel like that much if I was healthy) I slept most of the day.  George, the cat, helped, by demonstrating good napping technique.  Then when I woke up around 4:00, I realized I had to take my "meth shot".  I did that, and now I feel even more crappy.

On the bowel front (or back), I'm having constipated diarrhea, which is what I call it when it is hard to go, but when I finally do, it is all D.  I had at least 8 BMs today, so not too bad.  However, I'm not eating anywhere what I normally would.  I just have no appetite anymore.

I hope the lab techs can get the blood they need tomorrow.

Last Day of Summer Vacation

We were awoken today to the words of a not very happy child saying "it's the last day of summer vacation, lets go play!"  Poor kid.  He starts school tomorrow, and I'm sure it will be a great year for him, but I understand why he's sad summer vacation is over.

As of yesterday afternoon, I have had pretty much non-stop abdominal pain.  I have done the painkillers non-stop, not that they've helped all that much.  Also, yesterday afternoon, I stopped having bowel movements.  It got me a bit worried, as in the past, pain plus no BM has meant obstruction.  Fortunately, this morning, I had a BM, part formed, part D.  (sorry if this is TMI, but with Crohn's Disease, you get used to analyzing BMs).  But before that happened, I was awoken in the middle of the night to intense pain.  I couldn't fall back to sleep, and it was another 2 hours until I could take another pain pill.  I just had to wait it out.  Eventually, I was able to fall back to sleep.

Today, we went to an "end of summer vacation" barbecue with my sister, brother in law, two nieces, some of my sister's friends who were in town visiting and my mom.  My son, who is 7, played great with his nieces, who are 4 and 2.  He took turns, and played hide and seek with his 4 year old cousin.  He even alerted us when she got sick.  Then he found a boy his age to play with, and they were spinning on the tire swing.

By the time we got home, I was exhausted.  I slept for about 2 hours.  Tomorrow will be a busy day.  First day of school opening schakarit, then I have a blood draw appointment in the afternoon.  If I am up for it, there is a boat ride on the Mississippi to benefit Neighborhood House, but I doubt I will be in the mood for it, or have the stamina for it.

Not So Fast, There, Missy!

Well, I guess I spoke too soon yesterday when I thought maybe I was improving.  This morning, all D, all the time.  And intense pain in my abdomen.  I had to cut short my conversation with my dad because it was so intense.  I wish I knew what is going on.

I wonder if it might be the Humira?  I usually take it every week, but due to a mix up with the specialty pharmacy, I missed my dose last week.  Then, after it was missed, I started to see some improvement, but now that I took it again yesterday, I am in agony.  I doubt that it is, that it is merely a coincidence, but I will grasp at any straws at this point.

I am exhausted today.  I slept over 10 hours last night, but still need a nap.  I will take one in a few minutes, after I finish this post.

I hate Crohn's disease!

Maybe I am Improving?

So for the last few mornings, the first BM of the day is normal.  Completely normal.  I wish it was like that the rest of the day, but maybe it is a start.  After the first one, however, the rest are in the range of explosive diarrhea to butt pee.  But at least that first one is ok.  So maybe it is the start to improving.  I notice that one is always before I eat.  So maybe if I stopped eating altogether, I'd get better faster.  Unfortunately, I like eating.

The exhaustion hasn't improved one bit.  So there is that.  I wish I could get through a day without needing several hours of nap time.  It doesn't matter if I sleep 7 hours at night or 9.  I still need a nap most days.  And even then, I'm still too tired to do much of anything else.  Blah!

My son starts school on Monday.  Last night, my mom came over and babysat for us, and then my husband & I went to Champps for appetizers and some time to talk.  It was the first "date" we've had since some time last year.  I think the last date we had was when we went to the movies to see True Grit and ate dinner out.  That was a while ago.  Anyway, it was so nice to just be with my husband and have some time away from the house for the two of us.  We didn't even go out for our anniversary this year because I had just gotten out of the hospital the day before.  After Champps, we went to "Back to School Night".  It was great to hear about their plans for the school year, and I am so excited for my son.  He's got a great mix, being some classes grades 2,3 and 4, and some classes, K, 1 and 2.  And even having grades 1 & 2 for Hebrew and Torah is a great mix for him.  I think he's going to do just great this year.  We scheduled a conference this afternoon with his homeroom teacher, so we hope to get everyone on board with his new OT plan right off the bat.

I Guess I'm All Better Now, or Maybe Not

Yesterday was my "meth injection", my weekly shot of methotrexate.  I spent the rest of the day dozing and not doing much of anything.  Then this morning, I had a 100% normal BM.  I mean really normal.  The kind of BM I haven't had in years.  As my sister joked, take a picture of it and post it on Facebook it is so normal.  I thought "wow, I guess I'm all better now!  I can go back to work, and I'll be feeling fine in no time.  Everything is great". Silly me.  I went to Target because we were out of milk, bread, juice and a bunch of other things.  As I'm in the store, I start to feel the sharp pains.  I am almost in agony.  Then I realized, I needed to get to a bathroom RIGHT NOW.  Luckily, I know where all the bathrooms are, and I wasn't far from the pharmacy bathroom.  So I run in there, and boom!  Explosive diarrhea  (ED).   Fantasy shattered! But wait.  Maybe that was an anomaly.  So I head home, unpack the groceries, and have to stop midway to run to the bathroom.  Again, ED.  After the groceries are put away, I watch some TV and decide to eat something today.  Boom!  More ED.  After talking to my sister for a bit on the phone, I come up to my room to read, but I don't get far before more ED, and more and more.  I guess I was too optimistic this morning with the one "perfect BM".  Then, I lay in bed to read, because all of the sudden, I am beyond exhausted.  Next thing I know, my son is in the room, telling me all about his trip to the zoo with his dad.  I couldn't even tell if it was the same afternoon or next morning.  I beg my husband for some more rest, and I sleep for about another hour and a half.

I guess I'm not cured.  I can't imagine how I'm going to live like this.  Any suggestions anyone?

Horny Crickets and other Stuff

Last night was miserable!  I was either coughing my lungs up or in the bathroom with major D.  I didn't want to keep my husband up, so I slept in the chair in the cat's room.  I may as well have stayed in bed, because my husband said he could hear me anyway.  Tonight he says he's sleeping on the couch downstairs.

He was at work today and I was home with my son, but I felt so horrible I couldn't do much of anything.  He kept saying he was bored, so finally at one point I suggested he clean his room.  He decided he'd rather be bored.  Eventually, he had a friend over.  They were so loud.  Even after I specifically said I was going to sleep and they had to stay downstairs, they still came up and woke me up.  Of course the coughing woke me up, too.

There is a horny cricket in our basement that is driving me crazy.  The noise they make, I wonder how in the heck they manage to attract a mate, but it must sound nice to female crickets, because otherwise they'd die off.  At least I can't hear it in the bedroom, only in the basement and main level.

Tomorrow my son is in care at the JCC, as my husband has to work all day.  I am considering going to the doctor because I've had this cold forever.  I am also out of pain meds, but I think I need to go to my GI doc for those.  I've had such bad pain yesterday and today.  I feel like I'm never going to get better.

Bored

I am so f-ing tired of being sick!!!!!  Today started out bright and early (5:30) because our son woke up and I had promised my husband he could sleep in.  So I went downstairs and set up Netflix and went back to bed.  Around 6:30, my son asked for breakfast and I told him I'd be right down.  At 7, he wondered where his breakfast was.  I had fallen back asleep  (oops!).  At this point, the Wii had frozen, and I had to fix it, so there was no going back to sleep for me.  After a few episodes of Phinneas & Ferb, we played a game of Sorry!  At this point, my son couldn't wait any more.  He wanted Daddy, and as it was after 9, I told him it was ok to see if he was up, which is code for "go ahead and wake him up".

They ended up going to the waterpark today.  I always take him to the waterpark!  This is the first time he's gone with his father.  But I knew there was no way I'd be able to do it.  Instead, I went to Costco, came home and napped for about an hour, then decided as I hadn't eaten yet today, I probably should have something.  I ate a little, and then decided to wash all the dishes as neither of us did them yesterday, and the sink was full.  Washing the dishes did me in, and I laid in bed for about 2 hours.  I was so tired, but I couldn't sleep any more, so I read a bit.  Then I put clean sheets on my son's bed, and that was it.  I was wiped out.  I still had to make dinner, but that wasn't too hard.  I promised steak to my husband, so I made steak for us and beans for our son.  I also cut up some red potatoes and grilled them in a foil pouch.  They came out great.

Unfortunately, along with being bored and tired all day, I also have had a lot of D.  Nasty D, to be exact.  And my butt hurts.  The bad thing is that I had the D even before I ate anything, and it hasn't gotten any better or worse since I've eaten.  I am out of pain meds, so tomorrow I am going to have to call my doctor and ask for some.  I've been trying to avoid taking it, but yesterday and today have been unbearable.  And my cold still hasn't gotten any better.

Oh, yesterday.  That was another boring day.  I didn't leave the house.  I started off the day by taking pain meds, and every six hours I needed more.  I usually don't feel too bad in the morning, but yesterday was a special treat, I guess.  I can't imagine going back to work unless something changes dramatically.  My husband and son got back from their overnight at the zoo, and I was happy to hear about how much fun they had.  My son read me a great story called A Fish Out of Water and did a homework page that he had to write some sentences about rain.  He complained about it, but then was so happy he could do it.  Then last night, his favorite characters would be on TV.  He absolutely loves Phinneas & Ferb.  We don't have cable, but the movie that had been on the Disney Channel only a couple of weeks ago was the ABC Saturday Night Movie, so we let him stay up and watch it.  He was so excited.

Tomorrow I am home with my son for the morning while my husband goes to work.  I hope I feel ok.  He starts school in one week, which just confirms that I missed his whole summer being sick.

OMG

This stupid cold won't go away!  And to make matters worse, I have a migraine and my monthly "friend" and of course, this makes the D about a thousand times worse.  I can't eat, but I'm hungry.  All I've eaten all day is some toast and a fudgsicle.  My poor throat is on fire, so I might have another fudgsicle, because at least while I'm eating it my throat feels better.

My husband and son came home from camping yesterday, and now they're at the zoo to do an overnight with the dolphins.  I don't enjoy sleeping anywhere but my bed, but I wish I could do some of this fun stuff with them. My husband & I also agreed we won't be going to the state fair.  I think this will only be the second time I am skipping it since I moved here.  At least I have our vacation to look forward to.  I just better feel better by then! I missed almost all the Shabbat services this summer, and I'm feeling leery about attending the high holy day services with all those people in one room right after school starts.  I'll get sick for certain.

I think I'm losing weight from all this D and not eating.  My wedding rings are starting to feel loose.  It is the least that I can get from all this suffering. I really wish I didn't feel like all that I do anymore is complain.  I am becoming the most boring person ever. 

Feeling Weird

I've been feeling so weird lately.  I can't describe the problem exactly, but my whole body feels odd.  Part of it is the cold but also part is definitely related to my methotrexate shot yesterday, or as Cori calls it, my "meth shot".  I have seen meth heads in my neighborhood (sometimes you can be thankful for foreclosures!) and I am as far from that as possible, but I like the name.  I haven't been able to nap today because of how stuffed my nose is, but I have only moved from the couch to the bed to the bathroom all day.  D isn't too bad, but I haven't eaten much, either.  However in the past, I didn't need to eat to have a lot of D.

I haven't left the house for days, unless you count putting the recycling at the curb.  Part of that is because I have my husband's car, which has its quirks making it a pain to drive, but I might go out tomorrow morning.  Of course, the husband and son are supposed to get back tomorrow night, so maybe I'll just wait until Friday.  I am out of chewing gum, and with the icky taste in my mouth all the time, I kind of need it.

I have been experiencing more and more pain in my abdomen, after it being almost non-existent for days.  That is troubling me.  I had to take the pain meds for the first time in at least a week.

I am hoping to recover soon, as I do eventually need to return to work, and I am excited about our vacation this February.  We cancelled our summer vacation, so this is needed.  Fortunately, between our Disney dollars and airline vouchers, it won't be too outrageous.

So Tired

Well, after I slept most of yesterday away, I had a hard time sleeping last night.  Not because I wasn't tired, but because of my cold.  I finally took a cold pill so I could sleep.  I woke up around 8:30 this morning, and all day I've been tired, but haven't really napped.  I have lazed around on the couch and in bed, though.

As far as eating goes, I'm not really in the mood most of the time to eat.  It doesn't really appeal to me.  And anyone who knows me knows this isn't the usual for me.  But I was craving chocolate cake.  So I baked one.  And washed dishes.  It was a big day here.

I got some odd paperwork from the disability people, saying I've requested to extend my disability until the end of September.  That was the original date my doc gave, but for some reason, they initially only approved it until the middle of the month.  I want the medication to have a chance to work before I go back to work.  Today, D wasn't too bad, only 2 full on liquid BMs, and about 5 or 6 other loose ones.  So wonderful to think that is a "good day".  Pain is getting more intense, though.  Sometimes it stops me from doing anything else.  Most of the time, it is more annoying than it had been recently.  Ugh!

Really Home Alone

Well, the boys are gone.  They are camping and I'm here all by myself with the cats.  I hope to do nothing until they get back.  I slept all day.  At one point, I woke up around 2:30 and I was so disoriented, I thought it was the middle of the night.  After a trip to the bathroom, I was asleep again until around 4:30.  So with almost 5 hours sleep during the day, you'd think I wouldn't be too tired.  You'd be wrong, though.  I am going to bed in a little bit.  I hate being this tired all the time.

I've been doing OK, not a ton of pain, but still quite a bit of D.  Yesterday, I barely ate, because I find that eating causes more than a bit of D and pain, and I'm not really hungry any more.  I hope I can at least lose some weight if I'm going to feel this crappy and not eat.  Today, I had a bit of D, but with sleeping all day, and barely eating, it hasn't been too bad.

I made vacation reservations for us for February.  I hope I feel better by then.  We're going to Disney and SeaWorld.  I've made the Disney reservations, but not SeaWorld yet, as I have no idea about that.  I'm still doing the research on it.  I hope everything is available, especially the Discovery Cove dolphin swim, since we'll be at SeaWorld President's Day Weekend.

The Nasty Cold Virus

My son has had a cold for about a week now.  That meant it was only a matter of time before he gave it to me.  My head is pounding, my throat is on fire and I'm very congested.  However, in some ways, it is a relief.  I am not concentrating so much on the diarrhea, abdominal pain and such.

My husband came home yesterday, so that is another thing to be relieved about.  They were supposed to leave to go camping today, but because my niece is very sick, they're going tomorrow instead.  I missed my husband, so I'm glad he's home today.

Target annoyances and other stuff

Because I shot up the last dose of Methotrexate on Tuesday, I refilled the prescription yesterday.  Well, the first time, they included the syringes with it.  Well, when I picked it up yesterday, I didn't check the bag at the store.  So when I got home and went to put the prescriptions away (I also refilled my folic acid Rx) there were no syringes.  I called the pharmacy and they said I didn't have a prescription for the syringes.  What?  How am I supposed to inject the medication without syringes?  So then they said I could buy them, but now I have to go back to Target.  UGHH!

My poor son is still not feeling well, but he insists he feels good enough to go to camp.  I believe him.  He is the essence of uncomplaining (at least when it comes to his health).  I know that if he complains, he feels sick, but if he doesn't, then he'll be ok.  He is very upset that tomorrow is the last day of camp.  I don't blame him.  I loved summer camp as a kid, and he's even more active and is even better suited for non-stop outdoor action than I ever was.

Yesterday was an odd day, bowel-wise.  I had a lot of D, but it was hard to get out.  So it was kind of like a constipated diarrhea.  Also had a LOT of pain.  But because I'm home alone with my son,  I didn't want to take a pain killer.  It made falling asleep last night difficult.  Then, I realized just how much my son talks in his sleep.  I just wish he said something I could understand.  Then it would make staying awake with him talking worth it.  I'd love to know what he dreams about.  I wonder if it is a girl, as yesterday, during a conversation about pretty and ugly, he named a specific girl as his definition of pretty.  He told me all the boys are in love with her, including him.  (ugly is a witch, by the way).

Fortunately, even with my son keeping me up all night, I slept most of yesterday afternoon.  I was so tired, and my legs have been hurting.  I'm not sure why, but it started shortly after I took my most recent dose of methotrexate.  I hope this isn't a side effect but instead is an odd coincidence.

Home Alone

Yesterday morning I dropped my husband off at the airport.  He'll be gone until Friday.  So it is just my son and I.  I am hoping to get through this without too much trouble.

As yesterday was Tuesday, it was also the day for my methotrexate injection.  After I injected, I spent about 4 hours in bed.  I dozed, but I also had a lot of muscle pain.  It was a miserable afternoon.  I also had a lot of bloody D.

As my husband was away, I had to get my son from camp, then bring him to OT.  Since camp pick up is at 4:30, and OT is in Woodbury at 6, we went out to dinner in Woodbury.  I took him to Panera, where he eat his entire PB&J sandwich and yogurt tube.  He wanted a cinnamon bun for dessert, even though it was as big as his head, so I gave him half.  He ate the entire thing.  After OT, when we got home, he ate an entire red bell pepper, a cup or so of blueberries and a bowl of cashews.  With all the energy he burns at camp, I guess this explains why his pants that fit perfectly at the end of the school year are now loose.

Whenever my husband is out of town, my son sleeps in bed with me.  He was tossing a bit in the middle of the night.  Poor kid has a bit of a cold, and he never gets sick.  He loves camp, and didn't want to stay home, especially with this being the last week.   I just hope I don't get it, too.

Monday

Well, today wasn't too bad.  I had some mid-afternoon pain, and a lot of D, but not intolerable.  I even went to Costco this morning.  But that did wear me out.  I remember having energy to go to Costco AND do at least one other thing in the same day.  It seems almost like a dream now, but I'm sure at one point I had enough energy to do both.  And I'm positive there was a time in my life when a trip to Costco didn't require a 2 hour nap to recover from it.  I just can't seem to believe it was real.  It feels like every thing I do beyond walking to the bathroom is going to require a 2 hour nap to recover.  Tomorrow is going to be horrendous.  My husband is going to Orlando for work, and besides driving both him and my son in the morning, I have to pick my son up and bring him to OT after camp.  That is like 4 hours of stuff to do.  And once we get home, I can't nap because I need to take care of him.  For a normal, healthy person, this wouldn't be a cause of concern.  For me, I am just so worried about how I'm going to get the energy to do it all.  And Wednesday, I have to drive back and forth from camp.  My husband won't be home until Friday afternoon.  I can't imagine how this will work.  But I'm sure we'll get through it.

On the bowel front, I have happy news (NOT!).   Lots of blood in my stools today.  Hooray for me, right?  It isn't making the fatigue any better.  At least it isn't butt pee anymore.  See, there's always a bright side!

Butt Pee and Other Delights of Crohn's

Crohn's disease has so many wonderful delights to it.  For one thing, I get to experience something I call "butt pee".  It is basically diarrhea so severe, it is like peeing out your butt.  And when the butt pee comes, it comes with friends, meaning I spend a lot of time in the bathroom.  Today was a butt pee day.  Fortunately, I don't have them often, but when I do have a butt pee day, I know it is not going to be fun.  I prefer not to leave the house when I have a day like this, as I don't want to be too far from the bathroom.  Fortunately, butt pee often doesn't come with a lot of pain, so I guess there is an upside to it.  Hey, no one ever said that I can't find the benefits of a sore bum.

Yesterday was a whole different story.  I was in extreme pain all day.  It was awful.  My son had a playdate at the house, but fortunately, my husband supervised that.  I took tramadol and stayed in bed for the better part of the day.  It was also the block party.  I showed up for a bit and then went inside to take more tramadol.  The A/C in our room wasn't working properly, and with all my pain in addition to the heat and humidity, I felt miserable.  Finally, after not being able to sleep, I figured I might as well be miserable while mingling with the neighbors.  I met the woman who moved into the formerly vacant home across the street.  She has kids around our son's age, which is nice, and she seems like a nice person.  I hope she'll be a nice addition to the street and maybe a friend eventually.

I figured out the issue with the air conditioner in our bedroom.  It has been running nearly continuously all summer, and I think the coils froze.  I had it off all last night and most of today, and now it is working great.  With the lower temperatures forecast, maybe it will get a rest now.  I am so sick of the hot weather.

I hope I don't have to wake up during the night for butt pee.  I'd like to get a lot of sleep.  My husband is going away on business this week, so I will have to be on top of my game this week.

All Night Long

Last night I was exhausted.  So tired, I fell asleep long before my son did.  However, due to bad pains, I didn't stay asleep.  I was up most of the night.  I had one vicodin left over from my visit to the ER last month, so when the Tramadol didn't work, I tried that. That did the trick, and around 1:30 or so I was able to sleep again.  However, when the alarm went off, the pain was back.  I spent most of the day in too much pain to sleep, but feeling pure exhaustion.  Finally, around 2:30 or so, I was able to nap.  I woke up around 5:30, to find the son & husband home and eating left over pizza for dinner.  I am missing life by this stupid disease.  Now they are playing outside, and I am still in my pajamas.  I will do reading with him tonight, but not much else.  He has a friend coming over tomorrow, and I will probably hibernate in my room.

On a completely lighter note, we got Netflix streaming about a month ago.  So I've been re-watching Star Trek: The Next Generation, and I'm waiting patiently for Deep Space Nine to be available (some time in October).  So last night in the middle of the night, I decided to watch the next episode.  I turn on the Wii, get Netflix loaded up, and ST:TNG is missing from my instant queue.  I figure one of the boys must have deleted it accidentally.  Nope.  Not available even when I searched for it.  I was so pissed off.  I was half way through season 4, when the writing and acting are finally good.  So I watched the first episode of Buffy the Vampire Slayer instead.  This morning, it still wasn't there, so I figured I'd watch "live TV".  Nothing worth watching was on, so I went back to Netflix.  And voila, there it was, ST:TNG back in my instant queue as if nothing had happened.  I was glad, because it is easy to watch when I don't feel good, since I've seen them all several times, however I haven't seen them in years, so they aren't overly familiar.

Miserable

I guess the title says it all.  I am absolutely miserable.  Besides having abdominal pain around a 7 or 8, I have a nasty headache.  I took the tramadol a while ago, and so far, it doesn't seem to have done anything.

I was able to get to Target and get milk and bread and such, but otherwise, I have not really left the bed.  I slept for about an hour and a half, but could use another 2-3 hours nap.  However the husband is home, and he came in the room, turned on the overhead light, and then left without turning it off.  I have a feeling I won't be left alone to sleep.

I have no desire to eat.  Anyone who knows me knows that is the complete opposite of my normal attitudes to food.  I usually love eating (and it shows!).  I hope it turns around soon, because even though I need to shed a few pounds, not eating makes me feel even more icky.

Started Out as a Good Day

Today started out not too bad.  Until about 11:00 this morning, I was in minimal pain, minimal D and not terribly tired.  Then it was like a switch was turned on (or off).  All of a sudden, I had massive cramps, spent about an hour in the bathroom and was just all over miserable.  I know how my hormones affect my Crohn's and all, but it was like an on/off button today.  I wish I could change the channel.  I was unable to nap because I kept having to go to the bathroom.

I'm more pessimistic today than I've been in a while that I'm going to feel better any time soon.  I just can't convince myself that anything is going to help.  My son really wants to go to Disney World, and my husband doesn't feel the need, but we could probably afford it if it was just me & and my son.  But I can't imagine that by February I'll feel any better than I feel today.

Time to Visit the Vampires

Well, today was a visit to the vampires.  Luckily, I got someone very good, and it was only one needle poke instead of the 6 it took last week.  Today was also my methotrexate injection.  Aren't I just the luckiest girl alive?

I was on the phone for about a half hour with the disability insurance people.  They say they now have everything they need to approve my claim.  I hope so.  The woman seemed to not have a clue what Crohn's was, because she kept asking where my pain was.  I must have told her it was my abdomen at least 3 times.  Oh, well.  She seemed incredulous that it could take 8 weeks for the medication to work, especially since I only take it once a week.  However much I wish it would work instantly, I have no control over it.  At least now I don't anticipate going back to work until the end of September.  What a summer vacation I have! (please note the extreme sarcasm)

Tonight is family night at camp.  I'm not going.  I have been counting today, and I've already had 18 bms today.  My poor butt hurts.  And I have no idea where all this D is coming from, as I would think eventually it would run out.  I think I am getting ready to give up hope.

Another Monday

It was Monday.  So after waking us up both Saturday and Sunday at 4:30am, this morning, we had to wake him up.  Doesn't it figure?

My older sister and I planned to go out for lunch, a rare occurrence for the two of us to have some time together.  We went to Tin Cup, near my house, and I had her drive, because I wanted to be able to take my pain meds.  They messed up our order so badly they gave us the meal for free, but it did take almost an hour to get our food, which for us was a nice opportunity to chat.  When we wanted to leave, it was pouring out.  And super windy.  We got soaked through just going to the car right next to the restaurant.

As soon as I got home I had to take the pain meds.  My pain level has been about a 7 all afternoon.  Probably because I ate fried chicken for lunch, but it was so good. And it isn't as if I hadn't been around a 4-5 all morning, anyway.  And even before lunch I had been having the mighty D all morning.  So I am glad I didn't let that stop me from spending some quality time with her.

Tomorrow I take my next does of Methotrexate.  And I need to get blood drawn.  And it is family night at my son's camp, something I really enjoy.  However, if I feel too poorly, I'll have to stay home, because I'd have to be very active to be there, and I know my son won't want to leave early if I don't feel good.