Social Event

We had a social event to go to today.  I contemplated not attending, partly because I worried I wouldn't feel well, and partly because I didn't really want to go, but there was the obligation to attend.  I went.  I felt like crap.  I couldn't eat the food (which was not unexpected).

The day started out pretty bad.  I was in and out of the bathroom several times before breakfast.  And the day didn't improve.  I had moderate pain off and on all day, as well.  And the exhaustion.

Anyway, my son doesn't eat meat.  Or as he puts it "dead animals".  Of course they only served meat.  Then he couldn't have the dessert, due to a well known sensitivity to food coloring.  Everyone in the family and all our friends know this.  We ask if they are serving something he can't have, to let us know so we can supply an alternative for him.  He gets upset when everyone but him can have dessert.  He's only 7.  And they didn't tell me, so I had to promise him "later".  Which worked out ok (meaning he didn't get too upset), but he hates to be different.

Tonight I hope to get 9-10 hours sleep, so I can be more awake tomorrow.  I will probably stay home while my husband and son go out and do fun things, but I'd like to get the grocery shopping done, even if it means a 3 hour nap afterwards.

Life passing me by

I have Crohn's disease.  I've had it since 1987, and let me tell you, it sucks.  I've been flaring since at least October, and now I'm stuck being sick for the summer.  And now I am so fatigued, so exhausted that I am sleeping like a cat, 15 or so hours a day.  Oh, not all at once.  I sleep for 8 or so hours at night, then nap most of the day away.  I barely see my son.  I want to get better.  I want energy.  I want to have fun.  I also want to eat a salad.  But if I ate a salad now, I'd be in so much pain.

I hope to write about my experiences so that I can keep track of where I've been, so that hopefully, when I get on the other side, and in remission, I can remember everything I've done.  And if I ever have another flare, I can go back and see what worked and what didn't.